Barb Caffrey's Blog

Writing the Elfyverse . . . and beyond

Posts Tagged ‘health updates

Moving Forward, Slowly…

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Folks, I continue to recover from the Nasty Respiratory Ailment (TM). I am much better than I was, and have completed two novel-length book edits in the past two weeks. Working on two more, too…and I have started writing a bit again, so I’m feeling much better about things overall.

That said, I wanted to talk a little bit about how sometimes being persistent means accepting the fact that you have to move more slowly than you might like. Illness does this, you see. Injury, too. And in either case, when you want to do more than you are physically capable of doing, it feels like beating your head against a brick wall.

Or maybe beating your wings against the bars of a gray, barren prison. (Whatever works as an image for you, though I definitely am more partial to the prison idea.)

It’s hard to deal with, the feeling of hopelessness. It really is. You want to be up and doing. Up and creating. Up and being the best self you can possibly be. But sometimes, to do that, you have to ration your strength and know your limits.

The way my husband put it was, “If you can’t do it today, you’ll do twice as much tomorrow. And if you can’t do it then either due to Real Life (TM), you’ll do three times as much the next day.” His view was that you had to believe you would keep moving forward, no matter how long it took, and no matter what in life stood in your way.

See, if you know your path and stay on it, good things will happen. You have to look hard sometimes to find those good things. But they will happen. You’ll meet good people, and you’ll be able to talk with them about things that matter to you. You’ll have exchanges of viewpoints, and sometimes may have your mind changed — or at least challenged — in ways you won’t expect. (Personally, I find that among life’s best of treasures, though it is woefully unappreciated by many who’d rather stay with whatever their personal status quo is. Too bad about ’em, isn’t it?)

And you will create. If you keep trying, you keep working on it, you keep thinking about it, and you do whatever is in your power on a daily basis, you will create.

That’s the hard lesson I’ve had to learn. And because I’m stubborn, I learn it over and over and over again. Because every single time, I want to be healthier than I am; I want to be stronger than I am; I want to snap back from ill health faster than I’m capable of; I want to do more, be better, create things of lasting worth…and I often wonder if I’ve failed at the lot of it.

That said, at least I keep trying. I move forward, slowly.

And that’s perhaps the whole trick of life. Find your path. Move forward on it, no matter how slowly it may be at times. Treasure the people you meet. Find common ground when you can, accept the stuff that will never be in common, try to delight in it when you can…just find whatever you can, and do that, and keep doing it as long as it makes you happy. (And, of course, hurts no one, is ethical, principled, etc.)

This is what matters. (Don’t let anyone tell you anything different, either.)

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Written by Barb Caffrey

November 9, 2018 at 1:04 am

Tiredness, Writing, and Two Quick Comments on Recent Events

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I figured I’d give you a quick health update, for those of you keeping score at home. (Someone must, after all.) I’m a lot better than I was three weeks ago. I’m back to editing on a more or less normal schedule, and I can and have resumed most daily activities, with some caution. I can do more than one thing a day now, which is very good; I can also do some more extended/difficult things, like shopping for an hour-plus (always hard for me to do, considering I walk with a cane and have some back issues), without making things any worse.

That said, the Nasty Respiratory Ailment (TM) is not gone by any means. It’s just a lot better, that’s all. Not quite down to a simple respiratory ailment (or even a capitalized Respiratory Ailment, which must be worse, right?), but still enough to get in the way if I don’t keep a running calculation of how much energy I have on any given day — and how much I can, in all actuality, do.

I’ve had some folks in the past ask me why I’m so open about my health. Mostly, I think someone out there may need to know that he or she is not alone; maybe they’re dealing with health issues, too. Or maybe they’re frustrated because they’ve been sick for weeks, and they wonder if there’s any daylight on the other side, because it’s been so long since they felt halfway decent, they can hardly remember when that was.

And I know I would’ve liked to find a blog like this when I felt my worst.

It’s because of the health issues and only because of the health issues that I didn’t blog at the time about two very big stories that upset me greatly. The first was the shooting at the synagogue in Pittsburgh; the victims were older folks, and all except for one were there to delight in the glory of God. (That last, a doctor, rushed to the scene when he heard gunfire, and was shot dead with the rest.) And the second was the unwarranted and vicious murder of journalist Jamal Khashoggi in Saudi Arabia; this last is compounded by the problem that the United States has not taken the lead on this despite Khashoggi being a permanent resident of the U.S. at the time. Instead, Turkey has been the one to find out the most details, and to do the most pressing on the international stage to get justice for an innocent man.

Both are horrible tragedies, and are hard even now for me to write about because I hurt so badly when I think about them. I don’t understand how a bunch of innocent people in a synagogue could be shot to death (and a doctor, rushing to help, too); I don’t understand how a writer who advocated for peace in the Middle East and for greater transparency and for the freedom of the press to do their jobs could be dismembered without the formal representatives of the country he was living in at the time, the United States (read: the State Department, the President of the U.S., the Senators on the Foreign Relations Committee, etc.), being outraged.

I am outraged by both.

So while I’m very slow off the mark to write about either thing, I wanted you all to know that I did see these stories. I was saddened greatly by them. And I hope there will be justice for the victims, because what happened to all of them should not have ever occurred.

It’s hard to heal when you see such devastating things as this. But I will continue to do whatever I can to get healthier, so I can perhaps write blogs in a timely manner when I am upset, outraged, or better yet, really happy over something going on. (Hey, it could happen.)

Written by Barb Caffrey

November 3, 2018 at 2:38 am

Continuing to Battle…

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Folks, just wanted to drop a wee blog to let y’all know I’m still alive.

The last few weeks have been extremely challenging, to say the least. I don’t know why I have so little energy. Yes, I’m recovering from the Nasty Respiratory Ailment (TM), but something still seems off. My doctor doesn’t seem that worried, as there are lots of things that could be setting off Nasty Respiratory Ailment (TM), and besides, my health hasn’t always been that robust anyway.

But for the most part, as difficult as it’s been for me since my husband died, I’ve been able to muster up the energy for the absolutely essential things after the worst of the grief passed off. (Granted, that took a few years. But still.) Or at least I felt it would come back when I did get sick, as I had bigger things to do and only a certain amount of time to do them.

I no longer have that certainty.

Granted, I’m going to continue to work toward better health. I still have things I need to get done. Stories to tell, books to edit, friends to make, family and friends to support, all that…and I intend to do those things.

But Nasty Respiratory Ailment (TM) has definitely got me down. I have had to ration my strength, and cut way back on my activities because of this, and I haven’t enjoyed it. (For example, I missed the October concert with the Racine Concert Band, and I hated to do that. But I couldn’t even lift the saxophone at the time, much less play it, and I’m not all that much better off right now…though I do think I could play for a few minutes if pressed.)

Then again, if I did enjoy it, you would wonder about me, wouldn’t you? (More than you do already, I suppose.)

Anyway, I keep thinking about what my husband told me when I was sick. (Which happened often then, as now, though I felt better about it as he was there and I knew he loved me with all he had and everything he was, so I had a really good reason to get better ASAP.) His contention was that rest, at times like these anyway, was the priority.

Yes, rest is boring.

Yes, rest is annoying when you want to be up and doing.

Yes, rest doesn’t seem like it’s accomplishing anything. (And I do mean anything.)

But rest is the only way to win through to a better, brighter day. One with less illness, and more hope.

I’m in the phase of recovery now where I am really antsy for that better, brighter day. I can again edit. I can, with difficulty, compose some music, and I can write a bit, too, as you see by this blog.

It’s good to be able to do these things again.

But to do them, I still have to basically put everything else to the side, and concentrate only on one thing, whether it’s editing, helping my mother, or doing my laundry. That one thing gets done; everything else is forced to wait until the next day. And believe me, any time I move around, Nasty Respiratory Ailment (TM) lets me know it’s still there, waiting to derail me…

Ahem.

So, I will keep searching for that better, brighter day. And I will do what I can to make that happen, so I can get done what needs to be done…and maybe find some peace and happiness along the way, too. (Hey. It could happen.)

 

Written by Barb Caffrey

October 26, 2018 at 12:32 am

“Sadiversary” Week, Fatigue, Illness…

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Folks, later this week will be the fourteenth “sadiversary” — that is, the saddest anniversary there is — of my late husband Michael’s death. I struggle with this every year; unlike some widows and widowers, I seem stuck, and think more and more about him over time rather than less and less.

Granted, I’ve also done my best to “make new memories” and have even gone on a few dates. (Two, to be exact.) And I was in a long-distance friendship with a guy for a while with that I’d hoped for more with…but it didn’t happen. So it’s not like I’ve just shut myself down cold, even though it took a long time to even get to the point where I could try to do these things.

I keep wanting to wake up one day, and find out the previous fourteen years are nothing but a bad dream. My husband, in this scenario, is alive, glowingly vibrant, cooking me meals, helping with my stories as I helped with his (and yes, while I cook, too, Michael was the better cook; I was glad to step aside for him).

Hell, my husband even would do all the laundry, knowing I have a bad back, and if I was allowed to do anything at all, it was to sit at the laundromat with him “looking decorative” and of course carrying on a conversation.

Those were the days.

Instead, I wake up and find that the stark reality is, I’m here, he’s not, all the work I’ve struggled with, everything I’ve done, is not enough. Too few people even seem to be able to find out about our work, much less like it enough to tell friends about it who might also tell others.

When I’m sick, as I am now (I am guessing a sinus issue and possibly a weak onset of the flu), it makes it harder to believe that I am doing everything I can. And yet, I know I am. There isn’t any single thing I could be doing any differently; I can only do what I can do, and if it’s not enough, and if it drives me crazy that it’s not enough, well, I just have to live with that.

I’m grateful for my family and my friends. I’m also grateful for the two guys I went on dates with, even though I’m sure they were awkward and I knew I was very awkward, too. Even the guy I crashed and burned with in the long-distance friendship taught me something…I’m not dead, and I don’t think Michael would want me to do my best imitation of a vestal virgin because he’s already on the Other Side.

Still, I look at the totality of my life since my husband died, and it frustrates me so much.

Maybe we all feel this way, when we’re sick, that we haven’t done what we set out to do, and that we are failures because of that.

And I never expected Michael, the goodness of him, the totality of his existence, the love he brought to my life, and the sly sense of humor that invigorated every conversation and interaction with him. (As I’m trying to keep this to a PG level, as I know there are at least a few younger kids who read this blog on a regular basis, I won’t talk about the rest of it — shall we say that everything, absolutely everything, about my marriage with Michael was phenomenal, and leave it at that? Yes? Good.)

All I can do now is go on. It’s hard. I haven’t been able to see the road in front of me since the day Michael died. And even at my best with the three guys who’ve put up with me long enough to want to get to know me a little better, I still didn’t see anything but glimmers.

So, that’s where I am right now. I am sick. But tonight I’m going to try to edit, and I did manage to write this blog. Tomorrow I will do laundry, and think about Michael while I do it (as that makes me feel better, as I definitely don’t enjoy doing laundry in any way, shape, or form, but I do enjoy clean clothes). I’ll get to the doctor, do what they say to do, talk with my counselor of course as this is a very highly-fraught week, and do what she says also as best I can.

And I’ll try to be as good to myself as I can, even though that’s not something I’m all that good at.

P.S. Next week, I hope to talk about fun things again, or at least current events things…something different.

 

Written by Barb Caffrey

September 18, 2018 at 10:53 pm

When Creativity (Temporarily) Dries Up

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As I’ve said for a few weeks now on my blog, I’ve been dealing with a family health issue that has pushed almost everything else to the back of the line. As that seems to be resolving, my creative life is re-emerging…and as such, I thought I’d write a blog about why I think my creativity (save my editing work) more or less dried up during the recent emergency.

You see, we all have so much energy. (I’ve heard this called “spoon theory” or even “so many f**ks to give,” so whatever terminology works for you.) And when most of it is going to manage an emergency of some sort, there’s just not a lot left.

As there are probably more people out there who have to deal with this sort of thing, or maybe have dealt with it in the past, I know I’m not alone in dealing with the lack of energy or utter exhaustion that dealing with a crisis (along with continuing to do as much of your own work as humanly possible without collapse). But it is difficult, while you’re in the midst of it, to remember that…you feel isolated, almost the loneliest person in the world, and your own needs go to the back burner while you take care of someone else.

This has been called “caregiver fatigue,” and is a known phenomenon.

What makes me feel like myself, more than anything, is to create, whether it’s words, music, or a combination of the two. (That’s how I saw my work on CHANGING FACES, at any rate. I still intend to cut a companion CD of some sort down the line, if I can raise the money for such and regain the energy and strength to play my clarinet at top form.) But I can’t create like this, or at least can’t create very much.

No one can.

You just don’t have enough spoons to play with, as creativity takes a lot of spoons — far more than it seems at the time.

I know, from past experience with traumatic events, that my creative impulses will come back online after I’ve regained strength, rest, and health again. (As dealing with the crisis, especially coming out of two full months of illness, wasn’t easy.) And I look forward to the day I can wake up with a story idea, happily write it down, and think hard about what I’m going to do next without exhausting myself even further.

However, I’m not there yet. And admitting that isn’t easy, because I want to be known as a strong person, someone who can do anything she puts her mind to…someone who writes ten thousand words a week, maybe, as I did while my late husband Michael was alive, and haven’t managed to do consistently ever since.

I think overall that the important thing to remember, if you’re in a situation like I’ve been, is that so long as you’re still alive, and so long as you are doing your best, your talents will re-emerge once there’s sufficient energy for them.

And as a persistent person (I’ve sometimes been called almost pathologically persistent, which I don’t think is exactly a compliment), it’s all I can do now to remember that, and trust — as my niece, Jenni, also a writer, told me — that my creativity isn’t absent. It’s just brooding, waiting, and will burst out of me again once the energy has been restored to allow it to flourish.

What have you done in similar situations to nurture your creativity? Tell me about it in the comments!

Written by Barb Caffrey

April 17, 2018 at 2:30 pm

Do All You Can…

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…even when it doesn’t feel like it’ll be enough.

That is my motto, right now.

As I continue to struggle with my health, I have to remind myself that sometimes, doing all I can means to rest. Recover. Eat as much as I can (with a raw throat, that’s not easy, but it is again possible), and in as balanced a way as I can…take probiotics, to keep the antibiotics I’m on from destroying my gut bacteria…laugh, because it’s better than crying. (Or pulling my hair out.)

I continue to work on my plotting exercise (I talked about this yesterday), and will hope this will keep me from going stir-crazy.

I did write a thousand words today, though it was a different sort of exercise entirely, and was prompted by home internet problems. (I hate that, but it’s a very minor woe, all things considered. At least I can get out and use the internet elsewhere. So it adds a step when I am not at my best. So what?)

And I looked at the two edits in progress, figured out where I am, and have a good idea where I need to be starting tomorrow to finish them both up.

So, I’m staying on top of it as best I can. And am doing whatever I can, even though as I said above, it truly doesn’t feel like enough.

Written by Barb Caffrey

March 13, 2018 at 9:59 pm

Quick Health Bloglet

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Folks, I had written a longer blog today, but WordPress ate it…and I’m too sick to write it again.

That said, I have been reading a lot, thinking a lot, and resting a lot. It’s all I can do, while I continue to take care of whatever it is that’s got hold of me this time. (Flu flaring to bronchitis, I think.)

For now, as I wait upon recovery, I urge you to read all the books you can, in as many subjects as you can, and to learn as much as you can.

That’s the best way to spread truth and light, and maybe to find some sort of understanding in this world.

I’ll be back as soon as I can.

Written by Barb Caffrey

January 14, 2018 at 5:09 pm

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